Collaborating with the community to identify what matters most.
Ageing Well with Sickle Cell is a patient led project that aims to identify the unmet needs preventing people over the age of 35 living with sickle cell disorder from “ageing well” (improving their quality of life).
Latest news
Upcoming Focus Group!
Join us for focus group number 2!! We only have a small number of spaces!! Click here to find out more.
Focus Group 1 official summary report.
Read the official summary report from the Sickle Cell Society and see what our attendees had to say about 3 themes: Care with compassion, Mental Well being and Financial Stability. Click here to read more...
Faith, Resilience and Confidence
Celine Tulfour sat with the Ageing Well team to talk about her journey with sickle cell on the first Ageing Well with Sickle Cell Podcast. Click here to read more …
Project launch event
Sickle warriors, loved ones and clinicians came together for the launch of the Ageing Well with Sickle Cell project on Wednesday 5th March 2025. Click here to read more …
Focus Group 1
Hosted by the Sickle Cell Society the first focus group took place on Thursday 11th September 2025. Click here to read more...
Upcoming Focus Group!!
Join us for the first Ageing Well with Sickle Cell focus group .
